top of page
  • Facebook
  • Twitter
  • YouTube

UKCVFamily Blog

The latest UKCVFamily news, updates, guest articles and more! 


UKCVFamily have partnered with FreeWills.co.uk to provide all our supporters with the opportunity to make their own fully comprehensive Will for free. You can make your personalised Will online in three simple steps, from the comfort of your own home and with live support from their Will specialists.


Leaving a legacy in your will is one of the best ways of ensuring that we can continue our valuable work. UKCVFamily is run entirely by volunteers who are adversely affected by Covid-19 vaccination themselves, and nearly all of our work is paid for by donations. A gift in your will, however small or large, can help ensure we can always be here for the vaccine-injured and bereaved.



By making a Will you can ensure that your wishes, and the people and causes you care about, are provided for. FreeWills.co.uk are a member of the Society of Will Writers and have raised over 200 million pounds for charitable causes so far.

It will not cost you a penny, it's simple to do either online or on the phone, and is free from inheritance tax. You are under no obligation to leave a gift to UKCVFamily and can use this service without making a legacy donation, however, all gifts, whatever their size make a real difference to our charity.

 

We’re a few weeks on from the end of Module 4 of the Covid-19 Inquiry, and things are starting to settle down to a normal pace.

 

During the Inquiry we ran daily zooms for our members, giving them a much needed place to be with the community and decompress at the end of each day. The feedback received was that many would miss this regular contact with others, so we made the decision to continue with regular zooms. Our wonderful volunteers are hosting sessions on Mondays, Wednesdays and Fridays, with each session having a different topic or theme.

 

Fridays zoom topic was ‘how do you manage your anxiety?’ Our members experience anxiety in different ways including medical PTSD, health anxiety and social anxiety, so sharing coping techniques is hugely beneficial to enable others to perhaps benefit from tools they’ve not tried before. 

 

Many of the Trustees and volunteers saw a flare in their symptoms following the increased workload both during and after the Inquiry. Most of us have had to give ourselves some down time to allow our conditions the extra care and rest needed to continue our tasks. Every UKCVFamily volunteer is injured, bereaved or family of an injured person. We have to take extra care of ourselves to enable us to continue what we love: healing and supporting others. 

 

Despite any downtime taken, we’ve continued to provide and we’ve got many upcoming events for our members. We hold monthly EFT and sound bath sessions for members across all 3 groups, the first of which is being held next week. All of the mindfulness and wellbeing sessions we have for members are held by practitioners who are donating their time and expertise to our community. We are incredibly lucky to have their support and the feedback from these sessions is that they are very beneficial. Our Trustee, Brian, recorded a zoom conversation with Rebecca, who hosts the monthly EFT session. You can find the link to this conversation below to learn about the benefits of this practice. 

 

We are starting a series of interviews about taking control of your own health. Each interview will focus on a different member of our community and the questions, including those submitted by members, will aim to shed light on how that person has made improvements to their own health with the use of holistic practices and supplements. This isn’t about cures or treatment protocols, it’s about what we can do to make health more stable and manageable.  

 

This interview series will benefit our members greatly. We know from experience, research and from the Inquiry that treatment pathways for the vaccine injured are incredibly limited and virtually nonexistent. Finding tangible solutions outside of western medicine has seen many people take back the control and achieve huge improvements in many areas of their health. They discuss this within the support groups, but having dedicated interviews which will cover their journey will both inspire members and motivate them to seek their own improvements too.

 

Brian has been busy with a succession of positive follow-up meetings with MPs since the Inquiry. They have shown a willingness to engage with our concerns and take action, including supporting their individual constituents, asking questions on our behalf in Parliament and being willing to attend future UKCVFamily events. 

 

Following the Inquiry, some have seen a change in attitudes from people who have previously not supported or engaged with them over their vaccine injury or bereavement. One of our Trustees discussed how people who previously didn’t believe her experiences and didn’t want to talk about her health were now reaching out and sharing relevant articles from mainstream media. She hopes that this change will personally see her friendships improve and that our community will face less backlash and trolling in the future. That her online content was visible to those friends too is perhaps a sign that shadow-banning content related to vaccine injuries is also on the decline. 

 

We still have many in our community who are struggling following the events of the Inquiry and with the weight of managing their health. Hestia, an independent team providing trauma-informed support to core participants of the COVID Inquiry, are still supporting many of our members. Having them available, until the end of the Inquiry, to direct our members too has helped us a lot from a safeguarding standpoint, and we’re really encouraged by the feedback from members about the support they have provided. 

 

Tomorrow there is a social gathering in London, with volunteers and members coming together, and we look forward to hearing about their day and seeing the family photos. Much like the zooms, being with those who share your experience and truly understand your needs is a wonderful feeling. We hope to hold more in-person events in the future and we’ll be sure to share an update on this meet-up in due course. 

 

We look forward to sharing updates on all these events as they happen, along with updates on our own activities and progress. If you don’t already, you can follow our public Facebook page, or follow us on X, to keep up to date with all we are doing and any relevant articles and research from the vaccine injured and bereaved communities across the world. 

 

Here is the link to watch Brian and Rebecca talk about all things EFT:

 

 

 

UKCVFamily members and trustees were present at day six of hearings for the Covid Inquiry Module 4: Vaccines and Therapeutics, which included testimony from the support group’s founder, Charlet Crichton.


Prior to Ms Crichton, evidence was provided by Dame Kate Bingham, Dr Mary Ramsay, and Susannah Storey.


Kate Bingham notes on “Expectation Management” dated 7th May 2020 were displayed, and we were extremely disappointed that she wasn’t asked to elaborate on the note stating, “Vaccination may cause worse symptoms than the disease itself (ADE, cytokine storms).” It was yet another confirmation from this module that it was known all along, that injuries would occur.


Dr Ramsay described multiple systems that had been set in place in order to identify possible safety signals and deal with concerns about adverse reactions, when our members know from firsthand experience that none of those systems seemed to have worked as intended. We hope that our group’s evidence will prompt the Inquiry to look further into these systems.


Susannah Storey provided general information about the sharing of content concerning side effects and adverse reactions, which she stated was up to social media platforms to decide how to handle. This contradicted previous witnesses comments about DHSC’s role in public messaging.


UKCVFamily founder, Charlet Crichton, was then questioned on the 600-page document she submitted on behalf of over 2000 members. In addition to reiterating statements made last week by other vaccine injury groups, Charlet discussed the multiple chronic conditions that injured members have been left with, the failure of the Yellow Card System to respond to reports, the stigmatisation experienced when living with an adverse reaction, the extremely high rate of suicidal contemplation amongst the vaccine-injured (76%), and the possibility that, had the MHRA notified the public about VITT when they had actually become aware of the life-threatening condition instead of two weeks later, our members’ loved ones may still be with them.



In just 25 minutes, Ms Crichton confidently and compassionately returned the conversation to what Baroness Hallett had declared in her opening statement in July 2022: “Those who have suffered will be at the heart of the Inquiry.”



And Charlet did so whilst dealing with the recent loss of her mother, and managing her own ongoing health issues following her vaccination almost four years ago. We are all incredibly grateful.


Other members of UKCVFamily were featured in the Inquiry's Module 4 Impact Film, including the testimony of the daughter of the late John Cross, a retired pharmacist who spent months in hospital paralysed by Guillain-Barre Syndrome. The film can be viewed below (Please note that this film may be upsetting to watch).




Please support our petition to call for reform of the Vaccine Damage Payment Scheme, so that families like Mr Cross' can be better supported.


UKCVFamily are posting videos and daily updates from the Inquiry on our Twitter account, and our Friends of UKCVFamily Facebook page. To download and read UKCVFamily’s entire first witness statement visit; https://covid19.public-inquiry.uk/documents/inq000474462-witness-statement-provided-by-charlet-crichton-on-behalf-of-ukcvfamily-dated-17-10-2024/




 
bottom of page